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List of Tables=viii

List of Figures=ix

List of Plates=x

List of Abbreviations=xiii

Glossary=xvi

Acknowledgements=xix

Introduction / RENU ADDLAKHA=1

PART I. Disability Movement, Disability Rights and Disability Studies

1. Historicising Disability in India : Questions of Subject and Method / SHILPAA ANAND=35

2. Disability Rights and the Emergence of Disability Studies / JAGDISH CHANDER=61

3. Tracking Disability through the United Nations / N. SUNDARESAN=78

PART II. Family, Care and Work

4. Prenatal Diagnosis : Where do We Draw the Line? / ANITA GHAI ; RACHANA JOHRI=97

5. Burden of Caring : Families of the Disabled in Urban India / UPALI CHAKRAVARTI=122

6. Exploring Constructs of Intellectual Disability and Personhood in Haryana and Delhi / NILIKA MEHROTRA ; SHUBHANGI VAIDYA=145

7. Corporeality, Mobility and Class : An Ethnography of Work-related Experiences in Urban India / AMIT UPADHYAY=169

PART III. Gender and Disability

8. Bhalo Meye : Cultural Construction of Gender and Disability in Bengal / NANDINI GHOSH=201

9. Body Politics and Disabled Femininity : Perspectives of Adolescent Girls from Delhi / RENU ADDLAKHA=220

10. Identity Formation and Transnational Discourses : Thinking beyond Identity Politics / MICHELE FRIEDNER=241

11. The Inner World of Adolescent Girls with Hearing Impairment : Two Case Studies / SANDHYA LIMAYE=263

PART IV. Assertion of Difference through Art and Communication

12. Body/Text : Art Project on Deafness and Communication / JOSÉ ABAD LORENTE=285

13. Blind With Camera : Photographs by the Visually Impaired / PARTHO BHOWMICK=303

PART V. Contesting Marginality at Micro- and Macro-levels

14. From Mental Illness to Disability : Choices for Women Users/Survivors of Psychiatry in Self and Identity Constructions / BHARGAVI V. DAVAR=333

15. Need for a Framework for Combined Disability and Gender Budgeting / ASHA HANS ; AMRITA PATEL ; S. B. AGNIHOTRI=363

16. Sameness and Difference : Twin Track Empowerment for Women with Disabilities / AMITA DHANDA=390

17. Participation, Inclusion and the Law : Moving beyond Rhetoric / JEEJA GHOSH=414

About the Editor=423

Notes on Contributors=424

Index=429

LIST OF PLATES

12.1. Disability Rights (2008). Interpreted by Bahar Alan, Rishikesh Anand, Karan Kumar and Pravesh Behl.=285

12.2. Life Bricolage (2006). Performance and photography by José Abad Lorente.=287

12.3. Making the Way (2008). Interpreted by Navneet Kaur, Bahar Alan, Rishikesh Anand and Pravesh.=293

12.4. Cyber Connections (2008) : 'Computers and the internet mean communication.' Interpreted by Bahar Alan.=294

12.5. Expressions of Learning (2008) : 'I want to read and write. These make me feel good.' Interpreted by Karan Kumar.=294

12.6. SMS Boon (2008) : 'Mobile phones help us to communicate. SMS brings us together.' Interpreted by Mohod Haroon, Pravesh Behl and Hira Singh.=295

12.7. Definition, Discrimination, Debilitation (2008) : 'We don't like to beg. cry or get beaten because of our disability.' Interpreted by Mohod Haroon, Pravesh Behl and Hira Singh.=295

12.8. Signs for Living (2008) : 'I feel independent with sign language. It helps me to work and succeed in life.' Interpreted by Rishikesh Anand, Navneet Kaur, Bahar Alan and Sudesh Kumar.=295

12.9. Variegations (2008) : 'Justice for the disabled. Red, black, yellow, and white people. Learning equals prosperity. Our flag is orange, white, and green.' Interpreted by Bahar Alan, Rishikesh Anand, Karan Kumar and Pravesh Behl.=295

12.10. Body Calligraphy : Lotus I (2008). Interpreted by Rishikesh Anand, Bahar Alan and Sudesh Kumar.=296

12.11. Body Calligraphy : Lotus II (2008). Interpreted by Bahar Alan, Navneet Kaur, Rishikesh Anand and Sudesh Kumar.=296

12.12. Body Calligraphy : Cobra (2008). Interpreted by Navneet Kaur, Rishikesh Anand, Sudesh Kumar and Bahar Alan.=297

12.13. Body Calligraphy : I Love You x 8 (2008). Interpreted by Bahar Alan, Rishikesh Anand. Karan Kumar and Pravesh Behl.=297

12.14. Salute Colors (2008). Interpreted by Bahar Alan, Rishikesh Anand, Karan Kumar and Pravesh Behl.=298

12.15. Goodbye (2008) : Fragment from the poem 'Goodbye' by Federico García Lorca. Interpreted by Guruvendra Jhar, Mohod Haroon, Akshay Bhatnagar and Hira Singh.=299

12.16. It's True (2008) : Fragment from the poem 'It's True' by Federico García Lorca. Interpreted by Guruvendra Jhar, Kalaparthi Sudhir, Kara Kumar, Akshay Bhatnagar and Hira Singh.=300

13.1. A visually challenged person experiences a 'touch & feel' raised photograph at an exhibition by Blind With Camera. Photograph by Harsh Vyas (2011).=311

13.2. Memory of Touch by Bhavesh Patel (2009).=312

13.3. Chair and Door by Rahul Shirshat (2006).=313

13.4. Light and Shade by Satvir Jogi (2009).=314

13.5. Closed Door by Closed Eyes by Mahesh Umrrania (2006).=314

13.6. Sound is My Eye by Rahul Shirshat (2006).=315

13.7. Clapping Hands by Sujit Chaursia (2006).=315

13.8. Cycling by The Sea by Ravi Thakur (2010).=315

13.9. Maths Teacher by Nikhil Mundhe (2006).=316

13.10. Subway by Rahul Shirshat (2006).=317

13.11. Pigeon Series by Bhavesh Patel (2009).=318

13.12. Building by Ravi Thakur (2009).=318

13.13. Big Life by Kanchan Pamnani (2006).=319

13.14. Designer Shadow by Mahesh Umrrania (2006).=320

13.15. Self Portrait by Mahesh Umrrania (2006).=321

13.16. Visual Handshake by Dharmarajan Iyer (2006).=322

13.17. Mumbai by Raju Singh (2006).=323

13.18. Pillars by Raju Singh (2006).=324

13.19. Getting Close by Raju Singh (2006).=325

13.20. Pointing Fingers by Vaibhav Girkar (2009).=326

13.21. The Face by Vaibhav Girkar (2009).=327

13.22. This is My Sight by Nikhil Mundhe (2006).=327

13.23. Puddle by Satvir Jogi (2009).=328

LIST OF TABLES

1.1. Disability Historiography=37

1.2. Sample Survey of Histories of Disablement in India=45

2.1. Disability Models=69

15.1. Allocation Ratio per Person with Disability in Andhra Pradesh, West Bengal, Orissa and Chhattisgarh=375

15.2. Disability Allocation as a Percentage of State Expenditure=375

15.3. Beneficiaries of the NHFDC=381

LIST OF FIGURES

15.1. Total Central Budget Estimate and Expenditure for Welfare of PWDs (in millions)=371

15.2. Central Plan and Non-Plan Budget Estimate for the Welfare of PWDs (in millions)=372

15.3. Central Plan and Non-Plan Expenditure for Welfare of PWDs (in millions)=372

15.4. Disability Budget Analysis of Orissa : Total BE (in millions)=373

15.5. Disability Budget Analysis of West Bengal : Total BE (in millions)=373

15.6. Disability Budget Analysis of Andhra Pradesh : Total BE (in millions)=374

15.7. Disability Budget Analysis of States : Total BE (in millions)=374

15.8. Disability Budget Analysis of Orissa : Non-Plan BE (in millions)=376

15.9. Disability Budget Analysis of Andhra Pradesh : Non-Plan BE (in millions)=376

15.10. Disability Budget Analysis of West Bengal for 2004-5 : BE Components (in millions)=377

15.11. Disability Budget Analysis of Chhattisgarh (Non-Plan and Plan) for 2005-6=377

15.12. Disability Budget Analysis of West Bengal : Components=378

15.13. Disability Budget Analysis : Central Plan Allocation (in millions)=378

15.14. Disability Budget Analysis of Orissa : Total AE (in millions)=379

15.15. Disability Pension in States (in millions)=381

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Since the 1970s, the international disability rights movement, the United Nations and national governments across the world have attempted to ameliorate the status of the disabled population through a range of legislative and policy measures primarily in the areas of health, education, employment, accessible environments and social security. While the discourse in the disability sector in India has shifted from charity and welfare to human rights and entitlements, disability studies ? as an interdisciplinary academic terrain that focuses on the contributions, experiences, history and culture of persons with disabilities ? has not yet taken root.





This volume collates some of the most recent pioneering work on disability studies from across the country. The essays presented here engage with the concept of disability from a variety of disciplinary positions, sociocultural contexts and subjective experiences within the overarching framework of the Indian reality. The contributors ? including some with disabilities themselves ? provide a well-rounded perspective, in shifting focus from disability as a medical condition only needing clinical intervention to giving it due social and academic legitimacy.





This book outlines key issues that would be germane to any disability studies endeavour in India and South Asia, and will appeal to academics, activists, institutions, laypersons and professionals involved in social welfare, sociology, disability studies, women’s studies, psychiatry, rehabilitation, and social and preventive medicine.



This book is an unprecedented attempt to initiate an academic dialogue on disability studies in India by bringing together contemporary research, with particular emphasis on the intersections of disability with gender, class, caste, ethnicity, and urban?rural location in the diverse areas of law, policy, medicine, family and culture.



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