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Purpose: This study was conducted to describe the meaning of disease adaptation experience over a 5-year long-term follow-up of patients with short bowel syndrome.Methods: Four patients were recruited from a tertiary hospital in Korea. This study was conducted through first and second interviews from January 2019 to July 2022. The transcribed data were analyzed using narrative methods.Results: The mean age of the participants was 64 years, and the mean treatment period after small bowel resection was 100 months. The participants lost a mean of 19.3 kg body weight and all were receiving home total parenteral nutrition 2–7 days a week. The meaning of the experience of adapting to the disease for patients was found to be “extremely sensitive to the symptoms,” “considering eating food as another effective treatment method,” and “enduring the disease through family affection.”Conclusion: Patients are struggling alone to cope with physical symptoms and adapt to their disease. For this, they are doing their best to narrow the gap between normal and abnormal physical conditions by thoroughly implementing diet therapy according to their physical characteristics. This entire process is supported by their families.

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기사명 저자명 페이지 원문 목차
(A) practical guide for enteral nutrition from the Korean Society for Parenteral and Enteral Nutrition. 2, Selection and initiation of enteral feeding routes Ja Kyung Min, Ye Rim Chang, Bo-Eun Kim, In Seok Lee, Jung Mi Song, Hyunjung Kim, Jae Hak Kim, Kyung Won Seo, Sung Shin Kim, Chi-Min Park ... [et al.] p. 165-171
(The) 2024 Korean Enhanced Recovery After Surgery guidelines for hepatobiliary and pancreatic surgery Kwangpyo Hong, Hongbeom Kim, Hyung Sun Kim, Hae Won Lee, Ho Joong Choi, YoungRok Choi, Jae Do Yang, Sung-Moon Jeong, Dae Wook Hwang, Do Joong Park, Sang-Jae Park, Korean Enhanced Recovery After Surgery (ERAS) Committee within the Korean Society of Surgical Metabolism and Nutrition p. 172-180
Perioperative nutritional practices and pediatric nutrition support team implementation in Korea : a cross-sectional study Dayoung Ko, Honam Hwang, Hee-Beom Yang, Joong Kee Youn, Hyun-Young Kim p. 181-187
(A) narrative inquiry into the disease adaptation experience of long-term follow-up patients with short bowel syndrome in Korea Eun-Mi Seol, Eunjung Kim p. 188-195
Preprocedural prognostic nutritional index predicts early gastrointestinal symptoms after percutaneous endoscopic gastrostomy or percutaneous radiologic gastrostomy in Korea : a retrospective cohort study Yoonhong Kim, Jee Young Lee, Yeajin Moon, Seung Hun Lee, Kyung Won Seo, Ki Hyun Kim p. 196-202
Impact of tube feeding after pancreaticoduodenectomy on nutritional intake and status : a retrospective cohort study in Japan Masaharu Ishida, Masahiro Iseki, Shuichiro Hayashi, Aya Noguchi, Hideaki Sato, Shingo Yoshimachi, Akiko Kusaka, Mitsuhiro Shimura, Shuichi Aoki, Daisuke Douchi ... [et al.] p. 203-209

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